Giving Thanks

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Mom had her THIRD round of chemo yesterday. This means she’s halfway through the chemotherapy, and let me tell you, the cancer cells are scurrrrrrred. As Dr. Juvvadi examined Mom’s breast yesterday, she said, “I can’t even feel the tumor”. Needless to say, we’re pretty excited about this. This is a really good indication that the tumors have shrunk significantly. Since the liver and the breast/lymph node tumors are made of the exact same cells with the exact same receptors (triple positive), we know that whatever is happening up top is happening in the liver.

Scans!

Many of you may remember that after the third round of chemo it’s time for more scans! Mom hasn’t had any scans since the original staging studies. She is having a chest and abdomen CT and a breast ultrasound in two weeks, and we are praying for tiny or nonexistent tumors. I think she has a pretty good shot at these results! They’re also going to be able to take a look at that nasty blood clot that caused all of that drama at the beginning of this mess. I’ll be sure to post an update when we get the scan results.

Sadie’s Wedding

Mom has been handling the kryptonite (chemo) pretty dang well. Many of you know that after round two, Mom hopped on a flight to Cancun less than a week after chemo for my sister’s wedding. She did so great in Cancun, and we had no major issues. She got to relax and enjoy the ocean views from her hotel room or the pool when she needed to nap. She was amazing, and everything turned out so perfect for the wedding. Check out how beautiful she looked!

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I let her have ONE glass of champagne. Which she begged me for and hated anyway…

Side Effects

Mom’s side effects have consisted of the following:

  • fatigue
  • crazy taste buds (everything tastes terrible, even water)
  • nausea/occasional vomiting
  • upset stomach
  • sores (looks like fire ants bit her all over)
  • occasional nosebleeds
  • hair loss
  • body aches
  • neuropathy (numbness of her hands and feet)

She’s been able to manage most of her side effects with medications. She’s a total pill popper now. Of course you already knew about the hair loss. We did just learn that one of the chemo drugs she’s on may make it to where her hair never grows back. But I mean, what good is hair anyway when you rock a wig like this?

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Another really terrible side effect has been her crossed eyes. We may have to have her kicked by a mule. 😉

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“She falls down a well, her eyes go cross. She gets kicked by a mule, they go back. I don’t know.”

Name that movie.

Gratitude

As you can probably tell, we have a good time at chemo. I go get donuts so mom can eat something yummy before everything tastes awful. Mom’s had a couple of friends come visit like her sweet friend Kristen during round two and her longtime friend Blane yesterday. My grandparents also always come to be with her. They came to Texas when she was diagnosed and haven’t left since. She’s definitely loved! My sister and brother-in-law also come on some weekends and are coming for Thanksgiving! We’re going to love spending time together, eating turkey while my mom eats a banana and graham crackers, and being thankful for all of the good things in our lives. Because y’all, there is so much to be thankful for! My mom is alive, she’s being treated, and we’re getting more time together than we ever have.

We’re so grateful for friends, family, and amazing coworkers (that’s y’all!) who continue to love, support, pray, and offer sweet words of encouragement to my mom, to me, to my sister, to my husband, to all of us. This experience has reaffirmed what we already knew: That we are surrounded by the very best people. We can’t thank you enough for your continued support.

I’m personally grateful for the example of astonishing endurance, unwavering faith, and incredible strength that I am able to witness daily through being with my mom. She is so. dang. tough. I’ve watched her throughout this process in awe of the amazing woman she is. As crazy as it sounds, I’m forever grateful for this experience. I’ve gained so much. I love Thanksgiving because it reminds us to be grateful for all that God has blessed us with.

 

When upon life’s billows you are tempest-tossed,

When you are discouraged, thinking all is lost,

Count your many blessings; name them one by one,

And it will surprise you what the Lord has done.

Count your blessings; Name them one by one.

Count your blessings; See what God hath done.

Are you ever burdened with a load of care?

Does the cross seem heavy you are called to bear?

Count your many blessings; ev’ry doubt will fly,

And you will be singing as the days go by.

When you look at others with their lands and gold,

Think that Christ has promised you his wealth untold.

Count your many blessings; money cannot buy

Your reward in heaven nor your home on high.

So amid the conflict, whether great or small,

Do not be discouraged; God is over all.

Count your many blessings; angels will attend,

Help and comfort give you to your journey’s end

“Count Your Blessings”, LDS Hymnal

Happy Thanksgiving everyone!

Love y’all,

Sydnie

Getting Out of the Hospital

Blood Clot

Mom’s vitals are perfect, and her lungs sound great. The echocardiogram they did Saturday also came out perfect. They’re going to keep her on blood thinners, and as long as she’s on them, the clot will keep dissolving and hopefully she won’t have any more. They’ll probably want to keep her on blood thinners for quite a while since the cancer could possibly cause more clots, and we do NOT like clots.

Liver Biopsy

They were ready to send her home yesterday morning, but they decided to keep her for one more night so they could order a biopsy of the mass in her liver. It’s easier to order that as an inpatient procedure since inpatient procedures take precedent over outpatient procedures. The biopsy will be done sometime today. This means results will hopefully come quickly! We’re anxious to finally know exactly what we’re dealing with. We have an appointment with Dr. Juvvadi on Tuesday to discuss the results, if they’re ready in time. Hopefully mom’s body can chill out so this appointment won’t be cut short by another ridiculous emergency. 🙂 Biopsy results could possibly take up to 48 hours to get back, but hopefully it will be quick.

Bone Scan

The only other test we haven’t done that is necessary for staging is the bone scan. If you remember, that had to be rescheduled to today because of the barium sulfate mess on Friday. Because of the liver biopsy, we now have to move that appointment again. I’m going to reschedule it, and I’m hoping they can do Tuesday morning. I’m crossing my fingers. I think mom’s ready to not be tested anymore and to get on with treatment.

MediPort Surgery

If you remember random details or are stalking my mom, you may remember that the mediport surgery is currently scheduled for Wednesday morning. If you’re thinking surgery + blood thinners = uh oh, you’d be right. Dr. Juvvadi will talk with Dr. Clifford (surgeon) today to discuss what to do about this. The good news is mom doesn’t need the port for chemotherapy. They can do that through a PICC line, which is a tube that goes into her arm (like an IV) and up into her chest. The only problem with that is that the tube would hang out of Mom’s arm for a couple of months which doesn’t sound too glamorous. They still may decide to hold off the blood thinners for a couple days and do the port surgery later this week or next week. It depends on what the doctors think is best.

Pretending

Today we pretended like mom wasn’t in the hospital anymore. She showered for the first time in days (thank goodness), put on makeup, curled her hair, ditched the IV, and wore her regular clothes instead of the hospital gown. She looked pretty fabulous. We went down into a lobby with a couch and a big screen TV, ordered wings and pizza, and watched football with Sadie and Jason. It was nice for her to finally be able to get out of her tiny room and move around a little. Mom’s parents and one of her friends stopped by to visit, also helping to lift her spirits. She’s feeling pretty loved!

And thank you to everyone who I know wanted to come visit during mom’s short stay in the hospital. She kept visitors to a minimum since her “hotel room” (she keeps calling it that on accident) is the size of a shoe box. It gets a little crazy in here when multiple people try and squeeze in. I promise you’ll be able to see her soon! 🙂 I’ll keep you informed.

That’s all for the update on mom! I would like to write some things that would be helpful for me to get out, regardless if you read it or not. Feel free to skip this part. 🙂

My Thoughts

In times of deepest trial,
I plead to find relief.
On bended knee I seek thee
And pray I may find peace.
And in that darkest hour comes the solace I have sought.
I hear the faintest whisper:
“Be still, and know that I am God.”
I raise my eyes to heaven,
I feel thy presence near
And know that one who loves me
Has heard my searching prayer.
Thy gentle voice reminds me life’s battles must be fought.
I hear thee now more clearly:
“Be still, and know that I am God.”
I rise with sweet assurance;
My pain to thee is known.
Thou knowest of my suff’ring;
I do not walk alone.
Thy perfect love has healed me, because I have been taught
By one who bore all sorrows:
“Be still, and know that I am God.”

 

– Lyrics from “Be Still and Know That I Am God” by Janice Kapp Perry

 

Last night I went to pick up dinner for me and my mom. She specifically requested soup, so I went to Panera and got her the soup she wanted. As I was getting out of the car in the hospital parking lot, the bottom of the paper bag full of food split open and everything fell out onto the pavement. Mom’s soup was the main casualty, dumping out every last drop as it fell to the ground. The worst part of this was that I didn’t even drop the food, and I usually drop everything. It just broke open. I immediately burst into a violent sob and said, “Everything is so hard. Why does this have to be hard too?” I sat there on the ground in the parking lot crying for a few minutes. The thing is, I was not even upset about the food. Mom wasn’t even that hungry and the cookies were safe in a separate bag, so what even was there to really be upset about? (Our priorities are clearly on point – cookies first. Always.) So there I sat next to my car in the parking lot in a full-fledged ugly cry, but it wasn’t about the soup.

I wanted to share that with you not at all because I want you to feel sorry for me, but to preface this: When we are at our lowest, and we are desperately seeking solace, and we lose our cool in a parking lot for a few minutes (oh wait – that’s just me), we are not alone. We have a Savior who knows our trials and our afflictions. He’s experienced all of our sorrows. I know that the Lord knows our pain. He knows exactly, and I mean exactly, what terrifying and exhausting emotions we are experiencing.

Last night as I was kneeling, I changed my prayer. I began praying for my mom to get better, and then I tried something new. I told God that I trust Him. I told Him that I know He knows the desire of my heart, and He knows that I desperately want Him to heal my mom. I told Him that I know He has the power to heal her, I trust whatever His will may be, and I have faith in Him no matter what. As I did this, I felt peace slow my heart and steady my breath. I felt comforted. I was still, and I knew that He is God.

Please continue praying with us! We feel so encouraged and loved by all of you.

Love y’all,

Sydnie

What We Know

Mama Update:

How great is my mom? I mean it, she is great. She is strong, and she is beautiful. She is kind, and she is hilarious. She is awesome. I mean, really, cancer doesn’t stand a chance.

She was diagnosed with breast cancer a few days ago. What we do know:

  • They biopsied a tumor in her right breast (estimated size of 2 – 2.7 cm according to the ultrasound) as well as one axillary (armpit) lymph node. Both are cancerous.

That’s literally all we know. That information is all I got from reading the pathology reports three times trying to decipher it. I don’t know what’s more frustrating, the fact that she has cancer or that we don’t really know anything about it. It’s freaking stupid. We’ll hopefully know more later today when we meet with Dr. Clifford, a breast cancer surgeon. We don’t think we’ll know the stage of the cancer until she has surgery and they can biopsy or take out more lymph nodes, which will hopefully be this week (she wants surgery to happen ASAP).

Yesterday we spent our day lounging around watching the Bronco game and a lot of HGTV and ordering a bunch of surgery recovery stuff from Amazon. If you’ve been through breast cancer surgery or anything similar, please leave suggestions of what to get her in the comments! (You can comment by clicking “leave a comment” by the date above.) I want to make her as comfortable as possible while making this as easy as it can be. We know it will be so hard. And we know it will suck so much, but all we can do is stay positive and buy random crap on Amazon!

My Thoughts (if you’re interested):

Disclaimer: I posted this on Facebook as well. #sorrynotsorry

And he will take upon him death, that he may loose the bands of death which bind his people; and he will take upon him their infirmities, that his bowels may be filled with mercy, according to the flesh, that he may know according to the flesh how to succor his people according to their infirmities.

– Alma 7:12 (from the Book of Mormon)

I was having a really hard time the other night when we got the news, and I found so much comfort in reading Alma, Chapter 7 in the Book of Mormon with my husband. Then Forrest asked me what “to succor” meant, and I said “to help”. He then told me that “to succor” means “to run to”. He explained that when we are in need, Christ runs to us. He runs to us to help us and to lift us in our deepest, darkest, most difficult times. He has experienced the lowest of lows and can take us to the highest of highs. I am so grateful for the Atonement of Jesus Christ. I am so grateful for the beautiful gospel a loving Father has created for His beloved children. The hard times are still so hard, but I’m grateful to immediately know what to do in those trying moments. I know where I can turn for peace. I’m grateful that I have been taught to turn to Christ and that I have a testimony of the power of the Atonement. I’m grateful that I can call upon the Spirit for comfort, and I am grateful for the powerul love I feel in my heart that can only be from my Savior running to me in my time of need.

Listen to this talk if you’re looking for inspiration: https://www.lds.org/ensign/2009/09/lessons-from-liberty-jail?lang=eng

Love y’all,

Sydnie